Skip to main content

(Please Don't) Rock Me Like A Hurricane


Let me start by honoring this wonderful day. 100 years of Packer football. And who better to kick off Sunday night than meeting 197 for the iconic Packers and Bears.

So, of course. My bear, isn't a Bears fan.

Go Pack Go.

But, on a much more serious note... Go away Florence Go.

Seriously.

Do I have any clue where this thing will make landfall? No. And that doesn't actually matter to me. What matters is the small key piece of information explaining that once the hurricane makes landfall over the Carolinas, it will most likely stick around for a few days.

Hovering over us.

A Category 4 Hurricane. Just fucking sitting on top of us.

Can you spell a barometric pressure nightmare?

So I could care less if they evacuate us or not. My concerns lie with getting my proper medication, having access to proper air conditioning, and being in a place where a giant storm isn't.

I'd prefer to leave. And I love storms. I'd love to watch this storm roll in. I'd love to listen to the wind and the thunder. But this condition has other plans.

If it gets bad... I need to be able to get to a hospital.

If I thought the barometric pressure was a nightmare, lets revisit my recurring ability to get medication... or shall I say completely exhausting inability.

How exciting it was to receive word that I got approved for the new migraine drug, Aimovig. How not so exciting for my first dose to be damaged in delivery.

How even more exciting for Express Scripts not acknowledging the urgency flag on my refill request and informing me that even though they said I would have it Friday, no one actually set that in motion, so they'll overnight it to me Monday. Tomorrow. Which means I will get it Tuesday evening.

Now, this Hurricane will be here Thursday. Evacuations may have already started. Me needing this medication puts a real damper on evacuating.

Now, do I choose to just call them and say hey why don't we hold off on even sending the medicine and hope I don't die in the meantime because the pain is just that unbearable. Or do I choose to wait for the medication and force my mom to wait on me to leave, causing us both an extremely uncomfortably long car ride stuck in traffic?

And this isn't even the worst part.

If in fact this hurricane does hit... Charleston will in fact flood. How could I know this?

Its Charleston, it floods when its sunny outside who are we kidding. 

 So, hurricane Thursday? Hurricane sitting on top of us for a few days? Talk about lots of flooding. Now, if I have left, how do I get back the following Monday morning and avoid flood waters to go see my new doctor where I'm scheduled to get my depo-shot.

Oh, birth control? Who cares right?

Well, if you put migraines and screwed up female hormones in the mix and then throw in having to delay the shot to get the hormones back to normal... it just sounds like hell.

And only a few days later, I'm supposed to venture into Charleston to see my neurologist...

Charleston doesn't just flood and then "drain"

The water just sits. For days. Sometimes weeks.

And I'm expected to wade my way to doctors appointments?

To say I'm reconsidering when I moved back home is a ginormous understatement.

There isn't a hurricane in Wisconsin at the moment.

There is a giant tropical storm that's covered half the country, and oh yes, I'm certainly feeling that pressure front.

So, in short. This hurricane needs to make a sharp turn north. Like yesterday.

Welcome to my hell.

A.

Comments

Post a Comment

Popular posts from this blog

Positive Notes

Here I go mixing things up before things have really taken off. My featured picture is intended to represent the way chronic illnesses and disabilities are only really seen in black and white. My words are intended to fill in all that grey space that is ignored. But today I needed a little color. Because at the end of the day, there's a lot of brightness and light and hope that is key component to my every day battle. So here's a sneak peak and my brand new apartment. I think I've spent the last 4 or 5 years waiting for the day that I had a place of my own. Not because I wanted freedom to do what I pleased or had the same urge to be an adult and do adult things. I in no way want to make anyone think that adulting is fun or recommended for anyone. I didn't want my own place. I needed it. I needed to not have to snarl at my parents for running the garbage disposal or cutting the grass when my head hurt too badly to get out of bed. I couldn't take one more la...
Post a Comment
Read more

It Hurts

To say I feel less than human, is probably a bit of an understatement. But I do. I've been home for a week. I've managed to pretty much lay in bed in agonizing pain the whole time. I had a half-assed attempt to see a friend that resulted in me rushing home as the nausea and aphasia set in. I successfully made it to massage therapy today. Which meant even after sleeping for roughly 2 hours, I got up at 7:30 and sat in traffic for hours to get to a less than expected appointment. Mind you, my previous massage therapist was so wonderful I'm most likely spoiled to other techniques. This lady was late, she sat in the same god awful traffic I did. We spent more time going over the woes of her morning, than we did discussing why I was there and what I hoped to achieve through various massage techniques. The massage room wasn't dimly lit, and even as the massage started, lights were still on. I found this odd, but decided to just keep my eyes closed. Then she started ...
1 comment
Read more

I'm Confused As To Why You're Uncomfortable

Full disclosure, I'm well aware that the people I'm talking about, won't be reading this. But this is something that needs to be put out there, on the half chance you might click and read this one post, even though you've never glanced at the rest of them. One month ago, I came to the conclusion that I could no longer work in the capacity I have been used to working. Two weeks ago, I called off for my last week of work, and decided that I 100% needed to put my focus on getting healthy, or at least finding a way to manage my pain. This decision resulted in something no one expected: I medically withdrew from my university. In the weeks that have followed, however, you've bombarded me with your disapproving comments and your blatant lack of understanding. More family won't speak to me. People keep telling me they hope that by being back home, I'll get healthier and I'll be able to go back and finish my degree. I'll be able to take full...
Post a Comment
Read more