Skip to main content

Night And Day


I ordered shitty Chinese food, but the fortune makes me think the Chinese gods are trying to tell me something.

Don't know what but something.

Anyway, one thing that always is hard for me is this idea that I'm going to have plans or that somethings going to get done during x amount of free time.

People are constantly asking "oh got any plans for the rest of the day" or "doing anything fun on your days off?"

I've had two days off in a row. God bless.

First thing yesterday morning I got up and went to check my car into the dealership to get work done. I didn't have my car back until mid-afternoon. Yet, it was surprising that I didn't then go grocery shopping.

Today, I had physical therapy at 8 AM, followed by massage therapy at 10AM, and my groceries were ready to pick up right before noon.

I have the whole rest of the day to do whatever my heart desires.

But you see, two days in a row, I've gotten up much earlier than I would on a day off. So, there's no question in needing a nap mid day if I hope to be somewhat functioning by dinnertime.

But, I've also exerted all the energy I have.

People don't get that. People don't understand why I have these 6-10 hour chunks of my day not scheduled.

I felt great this morning. It's a gorgeous day out. I drove from destination to destination with my music blasting, windows down, and not a care in the world that the sun was shining.

Now there's sharp pains stabbing me all over my head.

So, I'll nap.

I got my groceries put away, and tonight I've planned a pretty easy meal with minimal prep. While that's cooking I'll use that time and the energy saved up for then, to package out the meats I bought so they can be frozen in proper portion sizes.

But, I won't do my laundry.

I mean I can't. The washer broke. The room smells like dead rotting animals. I have no quarters. I also have like 3 or 4 loads of laundry to do, and I just don't feel like breaking up a nap to stand in that awful smelling room.

The thing is. I didn't want to have plans these two days I had off. I worked over 40 hours last week (as a part time employee). I'm exhausted. My body is exhausted.

The idea of trying to save energy and missing important appointments doesn't interest me.

I need rest days.

I need to sleep all night and then spend half of the day lounging on the couch not doing much of anything.

That's how I make it through long weeks.

If I don't take it easy some days, I'll die everyday.

So I never know what to say to people when they ask what I've got planned.

I don't make plans.

A.

Comments

Popular posts from this blog

Positive Notes

Here I go mixing things up before things have really taken off. My featured picture is intended to represent the way chronic illnesses and disabilities are only really seen in black and white. My words are intended to fill in all that grey space that is ignored. But today I needed a little color. Because at the end of the day, there's a lot of brightness and light and hope that is key component to my every day battle. So here's a sneak peak and my brand new apartment. I think I've spent the last 4 or 5 years waiting for the day that I had a place of my own. Not because I wanted freedom to do what I pleased or had the same urge to be an adult and do adult things. I in no way want to make anyone think that adulting is fun or recommended for anyone. I didn't want my own place. I needed it. I needed to not have to snarl at my parents for running the garbage disposal or cutting the grass when my head hurt too badly to get out of bed. I couldn't take one more la...

It Hurts

To say I feel less than human, is probably a bit of an understatement. But I do. I've been home for a week. I've managed to pretty much lay in bed in agonizing pain the whole time. I had a half-assed attempt to see a friend that resulted in me rushing home as the nausea and aphasia set in. I successfully made it to massage therapy today. Which meant even after sleeping for roughly 2 hours, I got up at 7:30 and sat in traffic for hours to get to a less than expected appointment. Mind you, my previous massage therapist was so wonderful I'm most likely spoiled to other techniques. This lady was late, she sat in the same god awful traffic I did. We spent more time going over the woes of her morning, than we did discussing why I was there and what I hoped to achieve through various massage techniques. The massage room wasn't dimly lit, and even as the massage started, lights were still on. I found this odd, but decided to just keep my eyes closed. Then she started ...

I'm Confused As To Why You're Uncomfortable

Full disclosure, I'm well aware that the people I'm talking about, won't be reading this. But this is something that needs to be put out there, on the half chance you might click and read this one post, even though you've never glanced at the rest of them. One month ago, I came to the conclusion that I could no longer work in the capacity I have been used to working. Two weeks ago, I called off for my last week of work, and decided that I 100% needed to put my focus on getting healthy, or at least finding a way to manage my pain. This decision resulted in something no one expected: I medically withdrew from my university. In the weeks that have followed, however, you've bombarded me with your disapproving comments and your blatant lack of understanding. More family won't speak to me. People keep telling me they hope that by being back home, I'll get healthier and I'll be able to go back and finish my degree. I'll be able to take full...