Skip to main content

When Life Does Get In The Way


2015. I must have thought I was pretty smart in 2015. Hell. Look at the last paragraph or so. I actually had my head on just right.

I'm sitting here and Lee Brice is singing in the background that he'd take years off his life before he took life off his years.

I'm also sitting here wondering when everything went so wrong. Maybe if I hadn't been so hell-bent on leaving, I'd be halfway through a degree in historic perseveration. I'd be sitting downtown in some quaint coffee shop surrounded by new best friends.

Maybe if I hadn't decided I hated Clemson before I ever got there, I'd be there instead. I mean Lee Brice liked it a lot.

Maybe my sailboat should have been taillights.

I can't help laughing thinking that a version of me ever pictured a future that involved anything more than a bunch of cows and dogs and coffee.

But hey, that version of me didn't know this version of me. That version of me didn't spend days stuck in bed, glued to the sheets by pain.

Its hard to imagine what any real dreams look like. Hell, I can't even stick to a day to day plan. I can't commit to make some fancy cauliflower dish, so now the cauliflower is spoiled. So what does that say about dreams.

I'm starting to think that life got in the way. This disease. It got in the way.

Maybe its time to accept that the only dream that matters is one where a cure exists. One where medical advances come and don't come with a price tag more than my rent. One where I can watch storms roll in and not feel my head pulse with the shifting storm front. One where I can make plans without also making an excuse for why I can't go through with them.

One where I can go back to focus on chasing sunsets.

This is the part that most people don't see. Or don't understand. Or maybe they see it and don't want to take the time to acknowledge it. What do people do when all of their dreams get taken away from them? Hell, I never got to play a sport because some jackass screwed up my knee. I'll never get to serve my country. I'll never get to be a detective, not with this condition. I wouldn't be fit for duty.

What do people do?  I guess at the end of the day we just go on. We find some new passion. We find something to focus on. Something.

I'm not ready to stop fighting. I'm not ready to turn my life over to this disease. But in some ways, I already have.

I used to naturally wake up at the crack of dawn on Sundays, and would make my way to Starbucks to grab my morning coffee. Last night, all I wanted to do was wake up this morning, bright and early and go grab that morning coffee again. The writhing pain put a hold on that one today. But maybe tomorrow.

A.

Comments

Popular posts from this blog

Positive Notes

Here I go mixing things up before things have really taken off. My featured picture is intended to represent the way chronic illnesses and disabilities are only really seen in black and white. My words are intended to fill in all that grey space that is ignored. But today I needed a little color. Because at the end of the day, there's a lot of brightness and light and hope that is key component to my every day battle. So here's a sneak peak and my brand new apartment. I think I've spent the last 4 or 5 years waiting for the day that I had a place of my own. Not because I wanted freedom to do what I pleased or had the same urge to be an adult and do adult things. I in no way want to make anyone think that adulting is fun or recommended for anyone. I didn't want my own place. I needed it. I needed to not have to snarl at my parents for running the garbage disposal or cutting the grass when my head hurt too badly to get out of bed. I couldn't take one more la...

It Hurts

To say I feel less than human, is probably a bit of an understatement. But I do. I've been home for a week. I've managed to pretty much lay in bed in agonizing pain the whole time. I had a half-assed attempt to see a friend that resulted in me rushing home as the nausea and aphasia set in. I successfully made it to massage therapy today. Which meant even after sleeping for roughly 2 hours, I got up at 7:30 and sat in traffic for hours to get to a less than expected appointment. Mind you, my previous massage therapist was so wonderful I'm most likely spoiled to other techniques. This lady was late, she sat in the same god awful traffic I did. We spent more time going over the woes of her morning, than we did discussing why I was there and what I hoped to achieve through various massage techniques. The massage room wasn't dimly lit, and even as the massage started, lights were still on. I found this odd, but decided to just keep my eyes closed. Then she started ...

I'm Confused As To Why You're Uncomfortable

Full disclosure, I'm well aware that the people I'm talking about, won't be reading this. But this is something that needs to be put out there, on the half chance you might click and read this one post, even though you've never glanced at the rest of them. One month ago, I came to the conclusion that I could no longer work in the capacity I have been used to working. Two weeks ago, I called off for my last week of work, and decided that I 100% needed to put my focus on getting healthy, or at least finding a way to manage my pain. This decision resulted in something no one expected: I medically withdrew from my university. In the weeks that have followed, however, you've bombarded me with your disapproving comments and your blatant lack of understanding. More family won't speak to me. People keep telling me they hope that by being back home, I'll get healthier and I'll be able to go back and finish my degree. I'll be able to take full...